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J Korean Acad Psychiatr Ment Health Nurs > Volume 33(2); 2024 > Article
Journal of Korean Academy of psychiatric and Mental Health Nursing 2024;33(2):181-193.
DOI: https://doi.org/10.12934/jkpmhn.2024.33.2.181    Published online June 30, 2024.
The Experiences of the Life of A Mother with A Developmentally Disabled Child: Parse's Human Becoming Research Method
Min Ji Kim1  , Kyung Mi Sung2 
1Doctoral Student, College of Nursing, Gyeongsang University, Jinju, Korea
2Professor, College of Nursing ․ Sustainable Health Research Institute, Gyeongsang National University, Jinju, Korea
발달장애아를 둔 어머니의 삶 체험: Parse의 연구방법 적용
김민지1  , 성경미2 
1경상국립대학교 간호대학 박사과정생
2경상국립대학교 간호대학·지속가능건강연구소 교수
Correspondence:  Kyung Mi Sung, Tel: +82-55-772-8246, Fax: +82-55-772-8222, 
Email: sung@gnu.ac.kr
Received: 24 May 2024   • Revised: 12 June 2024   • Accepted: 19 June 2024
Abstract
Purpose
The aim of this study was to investigate the experiences of mothers raising a child with developmental disabilities.
Methods
The participants of this study were 9 mothers who had children with developmental disorders. Parse’s research method was used to analyze the experiences of these mothers.
Results
The analysis revealed the following structure of their lived experiences: denial of the developmental disability diagnosis and the resulting pain from feelings of frustration, confusion, and guilt; a sense of hopelessness for the future and the emotional scars left by negative judgment; the pursuit of a happy future for their children; and finding new meaning in their children’s diagnoses.
Conclusion
Despite the persistent pain and guilt experienced by these mothers, they can view their lives in a positive light by exploring the significance of their own experiences. These findings suggest that these mothers should recognize themselves as recipients of social support services and seek professional assistance in overcoming the various challenges associated with raising a child with developmental disabilities.
Key Words: Qualitative research; Mothers; Disabled children; Personal narrative


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