The Experiences of the Families of Persons with AIDS

Joo, Hye Joo

doi:2009.18.1.41

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Original Article

Journal of Korean Academy of psychiatric and Mental Health Nursing 2009;18(1):41-50.
DOI: https://doi.org/10.12934/jkpmhn.2009.18.1.41 Published online March 31, 2009.

The Experiences of the Families of Persons with AIDS

Hye Joo Joo

Associate Professor, Department of Nursing, Kyungin Women's College

에이즈 감염인 가족의 경험

주혜주

경인여자대학 간호과 부교수

Correspondence: Hye Joo Joo, Tel: 82-32-540-0185, Fax: 82-32-555-2614,
Email: joohj@kic.ac.kr

Received: 7 January 2009 • Revised: 3 March 2009 • Accepted: 13 March 2009

Abstract

Purpose
The purpose of this study was to explore the nature and structure of the experiences that the families of per sons with AIDS endure.
Methods
This was qualitative research using the phenomenological method. Data, which was collected using an in-depth individual interview of five female caregivers, was analyzed by Colaizzi's method.
Results
Six themes emerged from the analysis: 'Denial of reality* is the unimaginable feeling after discovering one of the family members is infected. 'Disease to be buried secretly in their heart' is the yoke to bear as well as the distress to conceal the AIDS infection. 'Resigned acceptance and incessant caring' is a coping method for their fight against AIDS, unwill ingly accepting it. 'Relative and absolute burden' is family responsibility, relatively or absolutely more serious and intoler able compared with other diseases. 'Inevitable sense of family duty* is a family feeling, intolerable yet unable to give up the infected, and the importance and growth of family is recognized while looking after the infected. Wshes for a better future' means a need for recovery and prejudice from AIDS.
Conclusion
This study is expected to be useful in the devel opment of nursing strategies and interventions for the families of persons with AIDS.

Key Words: AIDS; Families; Experiences

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